Find support for Psoriatic Arthritis | PsA and Me

 

PsA and Me isn’t the only place to get good advice about living with psoriatic arthritis. There are various PsA charities and support groups out there – both online and across the globe.

Find what’s available for you from the list below.

 

 

ASIA

PSORIASIS ASIA

http://www.psorasia.org/

PsorAsiaPacific has now 14 members and growing. It is the regional member of IFPA in the AsiaPacific.

Email for general enquiries: info@psorasia.org

AUSTRALIA

PSORIASIS AUSTRALIA

http://psoriasisaustralia.org.au/

Psoriasis Australia strives to assist people with psoriasis, or those wanting to know about psoriasis, by providing beneficial information and support enabling educated decisions to be made on treatment choices and lifestyle changes.

Many Psoriatics (those with psoriasis) have a need to communicate with others who can empathise with their problems.

We provide a forum where sufferers can learn how others handle problems, and provide suggestions on how to cope better when disgruntled and disillusioned with their condition and treatments.

ISRAEL

MIFRAIKIM TZEIRIM

http://www.mifrakim.org.il/

Mifrakim Tzeirim’s goal is to help people who live with Rheumatoid Arthritis and Psoriatic Arthritis by supporting them in the daily challenges that living with the conditions can bring. 

It is the association's mission to increase public awareness of the conditions and their effects on people’s lives, spreading information about rights and treatment innovations.

The association, in partnership with support groups across the country, holds regular conferences, seminars, and social activities for patients and their families. Representatives also take part in overseas conferences.

The association has a formal site and Facebook page in Hebrew:

http://www.mifrakim.org.il/

https://www.facebook.com/mifrakim/

 

 

MALAYSIA

Psoriasis Association Of Malaysia

http://www.psoriasismalaysia.org

The Persatuan Psoriasis Malaysia (Psoriasis Association Of Malaysia) is a registered, non-profit, self-help, lay organisation of psoriasis sufferers started in 1987 to help improve the life of people with psoriasis and their families. It is funded by public donations, membership dues and grants from friends in the pharmaceutical industry and is served by a few Medical Advisors who are practicing dermatologist from the Dermatological Society of Malaysia.

 

Contact Details:

Persatuan Psoriasis Malaysia Address: No 1, Jalan 14/2C, Taman Serdang Utama, 43300 Seri Kembangan Selangor Tel: 03-89484335 Fax: 03- 89481537

President: Mr Eugene Clifford Cross- crossecc@gmail.com

NORWAY

SpAfo Norge

www.spondylitten.no 

The Spondylitis Association of Norway (SpAfo Norge) is set up and run by volunteers. The association gives information and help to patients and caregivers with any form for spondyloarthritis; like ankylosing spondylitis, psoriatic arthritis, Crohn’s disease, ulcerous colitis, reactive arthritis, undifferentiated arthritis and spondyloarthritis in children.

The organization is built upon the experience through more than three decades of patient advocacy work in Norway. There are members from all over the country.

The association believes that knowledge is power and want to bring this to the AS community, so patients can have better quality of life. Its goal is also to raise awareness for AS in the general public, among health professionals and politicians.

A member magazine ‘Spondylitten’ is produced four times a year, with articles about rheumatology research, medication, treatment, patient rights, work life and how to live better with a chronic disease.

The website www.spondylitten.no also provides news and thorough information about all the spondyloarthritis diagnoses and how to live well with lifelong diseases like these.

You can find out more here:

ŸSpondylitten web page – Magazine for members, next of kin and health professionals

http://www.spondylitten.no/spondylitten/

ŸSpAfo Hjelper Deg! – Patient advocacy helpline on telephone and e-mail

http://www.spondylitten.no/spafo-hjelper-deg/

ŸSpondylitten Facebook page

https://www.facebook.com/Spondylitten/

ŸOur all-volunteer board

http://www.spondylitten.no/kontakt-oss/om-spafo-norge/

 

PHILIPPINES

PSORIASIS PHILIPPINES

http://www.psorphil.org/

Email for general enquiries: info@psorphil.org

PsorPhil aims to improve the lives of Filipino Psoriasis Sufferers by:

  • Educating the patients and public alike about psoriasis with its physical and psycho-socio-economic effects on its patients. A more informed community can yield more opportunities and better living conditions for patients.
  • Linking the economically challenged patients to institutions who can fund their medicines and treatments.
  • Providing a community for the sufferers that can guide them to having a good sense of being through emotional support.
  • Linking new patients with no doctors managing their conditions to proper and qualified medical practitioners.
  • Working continuously with the Department of Health (DOH) on seeking ways on how to include psoriasis into the national health policy and agenda of the government.
  • Working closely with the Philippine Dermatological Society (PDS) and other appropriate doctors for the better care and treatments of the patients.
  • Creating projects for the local government units (LGUs) and City Health Officers (CHO) that will look for people with psoriasis in the grassroots (barangay) levels.
  • Helping to create a national psoriasis registry.
  • Representing the Filipino Psoriasis Community in the global arena.
  • Providing a venue for sharing knowledge among psoriasis experts for the discovery of new and better treatments.

SOUTH AFRICA

SOUTH AFRICAN PSORIASIS ASSOCIATION

http://www.psoriasis.org.za/

Email for general enquiries: psoriasissa@gmail.com

People suffering from Psoriasis encounter daily battles, when it comes to managing their condition. Which makes it, not only a skin condition, but it can affect a person’s mental state of mind as well.

At the South African Psoriasis Association (SAPSA) we’re here to help. We aim to inspire those with the condition to step out of their shadows by:

  • Giving them access to breakthrough information
  • Boosting their confidence
  • Supporting emotional well-being

As each of our volunteers are people with psoriasis themselves, members can be assured that their advice is sincere from their own experiences.

Rhemaliga Schweiz logo

 

SWITZERLAND

RHEUMALIGA SCHWEIZ

https://www.rheumaliga.ch

Die Rheumaliga Schweiz ist die Dachorganisation von 20 kantonalen bzw. regionalen Rheumaligen und sechs nationalen Patientenorganisationen. Sie engagiert sich für die rund 2 Millionen Rheumabetroffenen in der Schweiz und wendet sich an Interessierte, Ärzte und Health Professionals mit Informationen, Beratungen, Kursen, Weiterbildungen und praktischen Hilfsmitteln für den Alltag. Die zahlreichen Publikationen rund um Rheuma sind grösstenteils kostenlos. Die Rheumaliga Schweiz wurde 1958 gegründet und trägt das ZEWO-Gütesiegel für gemeinnützige Organisationen.

The Swiss League Against Rheumatism is a national umbrella organisation consisting of 20 cantonal and regional Leagues Against Rheumatism and six national patient organisations. It actively pursues the interests of about two million people affected by rheumatism in Switzerland and provides interested individuals, physicians, and health professionals with information, advice, movement classes, further education and health aids for the daily routine. Most brochures about rheumatism are free of charge. The Swiss League Against Rheumatism was founded in 1958 and bears the “ZEWO” quality seal for non-profit organisations.

5 step + 5 ingredient PsA friendly energy bars

It takes two – why the relationship with your doctor matters!

Can’t see a group in your country?

We’re always looking for more groups from across the globe to work with, so don’t forget to keep checking back in!